I am a Christian mom of two kiddos with medical challenges (Histiocytosis-X, Dysautonomia, Epilepsy, Cerebral Palsy) who wants to share my story to inspire others to keep going and leaning on God while living life fully today! This blog is intended to express that we are living life fully today... one day at a time... no matter what happened yesterday or what will happen tomorrow.
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Friday, February 18, 2011
Here we go again
I really am starting to wonder if doctors really know what they're doing. I realize that it's natural to doubt, and they're certainly more educated than I am. I just wonder because as I write, Sophie's rash is worse, her cheeks are flush and she has a headache. She is in good spirits and though she's dreading the thought of ANOTHER biopsy later today at the dermatologist, I think she knows se'll be okay... Eventually... I am hopeful that we will get something to help her be comfortable through this while her body adjusts to whatever is going on. LCH, eczema, keratosis, etc... Who knows. I just know my baby doesn't feel too good and I want her to be better... This is such a long road.
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