Wednesday, November 2, 2011
Sophie: Well, we got a good report at Sophie's Neurology appointment today. We got a call that it had been moved from 9:00 to 10:15, so we ended up finally getting to see him around 10:40 and he did a very thorough exam. This man is the best in the world at this disorder supposedly, so to see him give her a work up was mind boggling. I think he checked everything going on with her. It was great. It took a long time, but even though she was very shy at first, she warmed up. He speakes with an accent, so I think it took some getting used to. She said her favorite part was when he took the vibrating tong and put it on her hands and feet and tested how long it would take her to stop feeling it. He asked a ton of questions, and after she got over her initial shyness, I think she did really well. He wrote a bunch of notes and kept having to run out into the hallway to give his notes to someone and they would type it into the computer. He said that today was their first day on a new computer system. Lucky us! It just meant everything took ten times longer than normal, but it was okay. We all desperately want her to get better, so I think her opening up to such a qualified physician was a great thing. You can't put a time limit on that... He said that she is going to continue to have issues with what he is calling a "generalized disautonomic disorder" but that she should get better with the treatment he is prescribing. He also recommended that we increase her iron because she was severely anemic. He has also recommended vitamin D3 because her vitamin D was low and a few other prescriptions. He said that she should continue to improve.
Then.... we went to the lab. Sophie and I waited and waited until her name was called. She has MAJOR needle anxiety and this was no different. They called her name and said to go to the orange room and then someone came in to stick her. She looked for a vein for a long time. Then, she tried to stick my little angels hand. The woman said she was having trouble getting a vein and that the vein wasn't pumping so she called for back up. Three other techs came in. Sophie started hyperventelating, sweating and got really really red and hot. She was scared to death. The one kindof motherly tech started wiping Sophie's face off with a rag. Sophie started to calm down a little bit. Then the bad news...They were only able to get about 8 cc's and they needed more for the tests they wanted to run. Then, they said they needed to go talk to the supervisor to see if they could get the rest with a finger stick. Sophie started to get more upset. She was really having a tough time... They came back, and got the rest of the blood that they needed but not without a few tears. She is so anxious about bloodwork. I do everything I can to comfort her but her anxiety is through the roof. But, with a promise of going to my office for the balance of the day, Sophie did well. After many long hours at the clinic, we finally got to leave and she was happy as a clam sitting at my office credenza, drinking and Diet Dr. Pepper and playing her game. She's such a kind hearted little girl, it's hard for me to see her have to go through this.
As far as Aiden, the Adenoid/Tubes surgery is in just over a week and though I am nervous, I know he will be allright because he is in good hands. Though I know there could be risks, I also know that he's gone through tubes surgery before and he did really well. And, overall it really helped him have less ear infections than before.
WEDDING NEWS!!! Well... Here it is... After planning for a few months now and realizing that waiting 'til June 2012 with all of the trips back and forth, we've decided to move the wedding up! So, we are getting married in December instead. The wedding is going to be beautiful and we are all very much looking forward to it.
We're going to have a small wedding with our closest family and friends. We appreciate in advance, your prayers for a long and happy marriage. We are overjoyed!
Tuesday, November 1, 2011
In the movie, Courageous, they call out absentee or lukewarm fathers, they call on them to GET IN THE GAME! While I agree that these men need to take responsibility, I feel that as women, we ALSO need to step up to the plate for our children (whether we are single or married) and instill in them the values we want them to mirror to the world. Regardless of whether we have a man who is willing to step up and be the father he needs to be for his kids or not, we still need to take a stand for them and point them toward the best choices possible. Parenting is no easy task, and I am by no means an expert. However, one of the most pogniant questions asked in the film is that if you knew today that your child wasn't going to be with you tomorrow, what would you change?
Would you color with her when all she really wants is time with you? Would you change the way you speak to your teenage daughter who gives you that smirk across the dinner table just to test you? Would you laugh more with the toddler who just wants to roll around on the carpet and be silly? Would you have that shoulder-to-shoulder friendship you know your college aged children are desperate for? Would you take the time to give him the one hug that you said you didn't have time for this morning? Would you listen more? What would you do?
Having two kids with recurrent medical issues, I have had a lot of time to think about this. To cry and think about what might be... and all I can say is that we must do the best we can, strive to be better parents than we know how to be, and savor the time we DO have. Live life fully today, and count your blessings one by one because TODAY, friends... TODAY may be all we've got.
In closing, I hope that for each and every one of you this causes you to take a moment and hug the ones you care about.
Dear God, Be with my friends who don't take the time to savor each moment with their children. Take their hearts and turn them towards You, so they might see grace and peace. It's in Your Son's precious name we pray, Amen.
Monday, October 24, 2011
I don't even know where to start. Sophie's not doing very well this morning. Her mobility is really decreased. We're waiting on TCH neurology to get back in touch with us, but we're having to wait several weeks to get in, and though she slept through the night, she did end up in my bed early this morning and was so dizzy this morning that she couldn't even walk down the hall without holding on to stuff. I even had to help her get dressed. She also said that she's having trouble showering, though she hasn't yet asked me to help her with that. I think it's just a matter of time. She gets so dizzy and nauseous every time she stands up. I'm wondering if I can rent a wheelchair or walker to help her get around. I don't think it's something that we need permanently, but it would do a lot in her being able to get out of the house. I can't carry her because of my back surgery (and the fact that she weighs over 130 pounds), but with her dizziness she can't do much... Contrary to today, Sophie had a good day yesterday. She was able to go to Kids XD. It did totally wipe her out, but she went, which I thought was good for her, considering... She got very nauseous and dizzy and lightheaded before bed and had a low grade temp. Adam's kids were here, so I think she wanted to put on a brave face for them.
Monday, October 17, 2011
The New Testament "Gamble" by John Lynch
"What if I tell them I love them, will always love them? That I love them right now, no matter what they've done, as much as I love my only Son? That there's nothing they can do to make my love go away"?
"What if I tell them there are no lists? What if I tell them I don't keep a log of past offenses, of how little they pray, how often they've let me down, made promises that they don't keep?"
"What if I tell them they are righteous, with my righteousness, right now"?
"What if I tell them they can stop beating themselves up? That they can stop being so formal, stiff and jumpy around me?"
"What if I tell them I'm crazy about them? What if I tell them, even if they run to the ends of the earth and do the most horrible, unthinkable things, that when they come back, I'd receive them with tears and a party"?
"What if I tell them that I am their Savior, they're going to heaven no matter what--it's a done deal?
"What if I tell them they have a new nature--saints, not saved sinners who should now 'buck up and be better' if they were any kind of Christians, after all He's done for you!"
"What if I tell them that I actually live in them now? That I've put my love, power, and nature inside of them, at their disposal?"
"What if I tell them that they don't have to put on a mask? That it is OK to be who they are at this moment, with all their junk. That they don't need to Pretend about how close we are, how much they pray or don't, how much Bible they read or don't?"
"What if they knew they don't have to look over their shoulder for fear if things get to good, the other shoe's gonna drop?"
"What if they knew I will never, ever use the word "punish" in relation to them?"
"What if they knew that when they mess up, I will never 'get back at them'?"
"What if they were convinced that bad circumstances aren't my way of evening the score for taking advantage of me?"
"What if they knew the basis of our friendship isn't how little they sin, but how much they let me love them?"
"What if I tell them they can hurt my heart, but that I never hurt theirs?"
"What if I tell them I like U2's music too?"
"What if I tell them I never really liked the Christmas hand bell deal with the white gloves?"
"What if I tell them they can open their eyes when they pray and still go to heaven?"
"What if I tell them there is no secret agenda, no trapdoor?"
"What if I tell them it isn't about their self-effort, but about allowing me to live my life through them?"
Wednesday, October 12, 2011
|Sophie felt realy puny yesterday. Still managed PINK for her IV, though. Girl's gotta REPRESENT!|
|The Child Life Specialist at TCH, who made Sophie feel so much more comfortable. What you don't see on Sophie's outstretched arm is that the nurse is drawing 12 tubes of blood! Yikes!!!|
|Some of the most frightening numbers I've ever seen, though I know it could be worse.|
|Baby Sophie 2002, Easter|
The storms that come about in our lives do not make me doubt YOU!!! I do not doubt WHAT YOU DID for ME on the cross. You still changed EVERYTHING for me when I realized that YOU love your children enough to send your only son to DIE for MY SIN! How could I wonder about who you are and why YOU would give Sophie and Aiden these illnesses, when this isn't of YOU at all? I know the NEW covenant and know that the promise of Jesus is to bear our sins FOR us (and our children), not to punish us for it. I want You to be with me right now dear Lord. Be with me, and be with my precious children, Lord. Be with them as they face the most difficult trials they have ever faced!!! Be with me, and walk with us as I see them through this. I only have the power to help them because I love like YOU showed me to love by loving me first! All I can do now is show love to the ones I love, and even the people I don't. All I can do is empty all my selfish thoughts and wants out at the base of the cross and fill myself with Your grace and Your peace. It's by that and that alone that we will be able to face anything, and I thank YOU, God. Help me to show Your unconditional love to my children and please give us peace.
Monday, October 10, 2011
I want to start tonight by saying, I have the most amazing fiance in the world. He has had to endure so much with us this year. From Histiocytosis (www.histio.org) that appeared in my daughter's system, literally days after we met, to Epilepsy and immune system issues with my son, the AWESOME Mr. P gets his name from being my rock, my fortress and the man I truly truly respect and look up to. He exhibits such grace and class and is a calming force in times of trial, and lately we've really seen our share... And he's romantic and loving and kind to my children, he has a heart for God and is more than I ever could have dreamed to find. I am blessed to know him. It has been one year today since the day we met, and I am a better person having him by my side. I can't wait to become the Awesome Mrs. P!
So, with some trepidation, I enrolled. I had no idea how this would work; the Awesome Mr. P in another city, and me in Houston, but we'd give it a shot. We were both committed and wanted to be certain we were prepared in every way to walk down the aisle next June. So, we did it. I talked to the director of the class to be sure that doing the Skype thing would be alright with everyone, and they agreed. The Awesome Mr. P and the Future Mrs. P (that's me) would both be going through this journey toward marriage, even though we would have to work out the technical side of the course as we went along.
The course we are studying is called Love and Respect by Emerson Eggerichs. I read through my workbook that first night, just to be SURE that what he was saying was going to go in line with what I wanted for MY marriage. It makes me laugh now, because I was being such a girl. MY marriage? REALLY? I am certainly NOT the kind of girl that wants to wear the pants, and there I was trying to take control of the situation, and what I needed to think about was how I was going to LET Mr. P take the reins, and through that, let God take the reins.
What the course is about is the point that men need RESPECT like they need air to breathe. They would rather be left alone and unloved out in the cold than be disrespected by peers. Women on the other hand, need LOVE like they need air to breathe. Not that they don't need respect and men don't need love, but it's a different level of need. This is a critical NEED. Women would rather be disrespected by their peers than be left out alone and unloved. (para. Eggerichs)
I was always sure I was a relatively liberated woman, until I heard what he had to say... you may not completely agree with him, but I do think he's doing a lot to teach us not only how to respect and love each other through the vows of marriage, but also how to better parent our sons and daughters. He talks at great length about how the unkind words and tumultuous marriage of his parents led to major insecurities on his part that he has been working his whole life to resolve. I don't ever want my kids to hurt like that.
Update on the kids...
Thursday, September 29, 2011
Well we got some really great news yesterday. Sophie’s art has been chosen by her art teacher to be part of the display in the district’s current Administration office display. The artwork was chosen from artwork by students from students in Kindergarten – twelfth grade from selections throughout the forty-five campuses in our district. I am so proud. I don’t even know which piece of hers was chosen, and I can’t wait to see the display! I will most certainly post pictures as soon as they are available.
Ahhh… Back to school. Nothing like being back to school… The movie “You’ve got Mail” affectionately discusses back to school’s essence as “Don't you love New York in the fall? It makes me wanna buy school supplies. I would send you a bouquet of newly sharpened pencils if I knew your name and address.” The affection is somehow lost on us… For us, back to school really means that the cesspool of germs and viruses is running rampant through the halls. Sneezy, Viral, Snotty Mucus-riddled children wiping their noses and then slobbering down a water fountain just really makes me wish I could wrap both my kids in bubble wrap before send them off… But then again, the ridicule that would be directed their way would be unparalleled and I would rather save them both the horror of that humiliation. Unfortunately, in our case, that’s how we look at things. It’s not the most ideal thing in the world as far as my children are concerned. With Sophie suffering with Histiocytosis and now Mononucleosis, and Aiden having Epilepsy and Hypergammaglobulenemia, it makes for an interesting season to say the least. Both kids have missed a lot of school thus far. The first two weeks of school it was a bad stomach bug. Included vomiting and diarrhea and temperatures and we all passed it around. Aiden and Sophie both had to go to the ER with that one, but for different reasons. Aiden because he was absolutely dehydrated. He had to receive IV fluids because he couldn’t eat or drink ANYTHING without throwing up which also meant he couldn’t get his seizure medicine, so we HAD to get him well enough to take his meds. I am hopeful that as their immune systems get stronger, they will both see a break in all the viral illnesses. Sophie’s was different. She presented last Saturday with chest tightness and dizziness. So, I automatically assumed she was having a Histio relapse, but she wasn’t thank God. She tossed her cookies as we were sitting in the ER waiting after triage had seen her and moved her to the front of the line. It’s not good to have a kid with an illness that gets moved to the front of the line… but both of mine do. When you walk into the ER and tell them your kid has tightness in her chest and dizziness and she’s got Histiocytosis and is treated at Texas Children’s Cancer Center, you’d be surprised how quickly they push you to the head of the line. Unfortunately, I have spent WAY too much money this year on copays, prescriptions and coinsurance amounts. We are totally just spent…
I am hopeful that this year will turn around and that next year will be better as far as medical expenses go. It could be so much worse, and I am thankful for all we DO have. I am blessed beyond measure…
Have a great day friends,
Thursday, September 22, 2011
Today is the end of an era at my company. We have sold our entire crude oil business (our largest business segment) to another company and today is the last working day for the 10 employees of the new company that remain here. Their stuff is all being boxed up today and is moving out officially tomorrow. I am going to miss all of them for different reasons. It's been great spending the last two years getting to know these people, and in many cases their families as well. It's been a long time coming... the announcement, that came on the heels of the firm being announced Houston's most profitable private compnay, was made a few months back. I just know the employees are ready to move on and that things may be different at the new company, but they do have jobs. That's the silver lining in all of this...
I am also collecting donations for the Hisito Cure foundation today! So far, we're up to almost $200 that will go directly to Hisitocytosis research. I couldn't be more excited! Yay! I will be mailing them directly to the foundation after the event on Saturday. Please contact me now if you want to send a check our way, and get in on the action!
Here's the email I sent...
Wednesday, September 21, 2011
Tuesday, September 6, 2011
Sophie has some sort of bug. It latched on Saturday and didn't really let go. She still managed to play and put on a smile when Adam and the kids were here, but she was very tired and congested. Last night she broke out into a horrible sweat and drenched her bedcovers with perspiration. I woke her up and gave her some Motrin because she felt hot, but she didn't have a temp, from what my thermometer read. She is really only one half the reason I stayed home. I needed to take her in and figure this out. I knew Dr. D would have an answer. She didn't know EXACTLY what it was, but said she suspected it was viral. So we wait... She said she'd either start to get better in 3-6 days or worse. ugh...
Aiden's been sick for weeks and though I thought he might be getting better, he took a turn for the worse over night last night. He can't breathe well at all and has so much congestion, I had no clue what to do for him. So, after myself or my mom sleeping with him for the last four nights in a row, nudging him because he would stop breathing in the middle of deep sleep, we knew it was time. Dr. D said it was a bad infection of the sinus and that he had some fluid in his lungs. When the doctor looks down at your kid and says, "poor little guy", you know it's not good. So, she prescribed an antibiotic and a breathing treatment for every six hours, she encouraged us to go see our ENT (the one who also diagnosed Sophie's Histiocytosis whom we love) TODAY. She urged us to call and say that she said that he needed to be seen. So, later this afternoon we got in to see the ENT.
Sophie was so cute, she insisted on going with us, because she wanted to thank her herself. I thought that was SO sweet. We got into see her, and the first think she said when she saw Sophie (who still felt kinda lousy) was, "You're a celebrity", obviously referencing the Katy Magazine article. You can read it here: http://www.katymagazine.com/blog/wp-content/uploads/Katy-Texas-My-Story-Helping-Sophie-Heal-Katy-TX.pdf. I thought that was SO sweet! Sophie just smiled and blushed. I don't think she knew how to handle it. Then we got down to business... li'l man was siiiick.
She looked in his ears with the otoscope and said that his tubes (installed on 2010) had dislodged and that one of his ears was pretty infected also. She said that we needed to let this upper respiratory/bronchial thing play out and then she would recommend a tonsillectomy/adenoidectomy for li'l man. She wants to follow up in six weeks. Knowing how sick he gets when he gets sick (high fevers, seizures) and that his snoring has gotten significantly worse as he's grown, she really understands his case and we think she knows what is best. I believe we will schedule the surgery and she said he may have to have a new set of tubes in his ears at that time. I prayed to God that no one in our family would have to have surgery for the remainder of this year, but sadly not the case. While we were there she also observed that Aiden hasn't gained any weight since April. 31 pounds and holding.
It's frustrating because I have one kid who looks at a brownie and gains 10 pounds and another who can't gain weight though he eats... a LOT... Well I guess another day, another bunch of fun for us.
On another note I had a great weekend with the AMAZING Mr. P and his brood of gorgeous and precious children. Here are some fun pictures to enjoy!
Wednesday, August 31, 2011
Ladies First, so we'll talk about Sophie first. Sophie is doing really well, a happy fourth grader. I am hopeful that she won't have any symptoms having to do with her Histiocytosis EVER, and the doctor has cleared her to wait 'til November to see him at the Cancer Center, which is a HUGE BLESSING! Because of the delay in needing scans, we went ahead and travelled over to the Merle Norman store and got her ears pierced! She's a big girl now and I think this was a real coming of age moment for her. She's not a "little girl" anymore, even though she will always be my precious little girl. I am so excited for the girl she is and the woman she is becoming. Amazing to watch!
Aiden is having more struggles than normal lately, however. It's upsetting to me to talk about, because he's been through so much. He's such a remarkable survivor. I never thought I'd be sitting her writing about Aiden. After all, I didn't expect him to make it out of the NICU after 32 days being born at 30.5 weeks with too many apneas and bradycardias to count as well as a level III IVH... much less, make it to two years, four months old! But... back to my point, he is currently having struggles with seizures and his Cerebral Palsy. He appears to have a greater degree of weakness in his lower extremities than we had originally suspected and is continuing to sit in a "W" posture, like a baby in lieu of "criss cross" like most kids are able to do at his age. He is also having no right or left handedness and is struggling with gross and fine motor skills especially on his right side. Thankfully, the ECI people are getting involved again and have recommended him for physical and occupational therapy. This is a great intervention and helped him immensely when he was enrolled when he was 6 months old.
Wednesday, August 24, 2011
I had back surgery on 08/08/2011. It was a lumbar laminectomy microsurgery aka. microdiscectomy (see earlier post). I am slowly but surely getting back to normal, but am not on nearly so much medication and the pain is very real, though it does get better with each day. I have read all of the latest fashion magazines, am up to speed on the bridal trends of this year and I know all about a family I never wanted to know named Kardashian. I never thought I'd be so entrenched in pop culture at my age, but that's what happens when you can't do anything. On the bright side of things, I am gradually getting back to normal.
I just wanted to let y'all know we're hanging in there. And, it's not like we haven't had anything newsworthy to talk about, but I am physically challenged when it comes to sitting upright. I will update you more as time goes by and I continue to heal.
Tonight, I just wanted to stop by to say THANK YOU for your prayers and support during the surgery. The flowers and gifts were GORGEOUS! Additionally, I am humbled by the generosity of those of you who brought meals by for us. I am extremely grateful to have such wonderful family and friends right now. Thank you SO SO SO SO much!
Big hugs going out your way tonight friends,
Tuesday, August 9, 2011
The ride to the hospital was by far one of the longest I had EVER had. The preop instructions forbade me from taking my pain meds or eating or drinking anything past midnight. After review of the preop instructions, I also noticed something VERY disturbing. There seemed to be some debate on whether they were operating on my right or left side of the L5-S1 disc. I definitely wanted to get that cleared up ASAP!!! I thought I distinctly remembered them saying LEFT, and since that's where the majority of my pain has been, I had to make certain to clear that up. During the painful drive there (NPO after midnight, remember) I felt every bump, every jerk of the wheel, every stop light... Excruciating! The good news is that my sainted mother drove me to the hospital and stayed there for what was probably a gut wrenching day for her, and the pain I was in also quite literally drove home the need for the surgery. When we got to the check in desk, we were pointed to the preop room where I was told by the nurse there that I could have had the pain med after all! WHAT??? Ugh! I asked if I could have one to take the edge off while we waited. I was the second surgery of the day. She said yes, and that she was so sorry that the pre-op group hadn't explained this. I downed the medicine with a tiny wallow of water and started to feel a little better and had a short siesta.
Just then there was a knock on the door. It was anesthesia. A nice young woman walked in to get a brief history on me and before she could start her spiel, I said, "There's one big question mark here. Is it Left or Right???" She assured me with a blank stare, that I would have a chance to talk to the Neurosurgeon BEFORE I was cut on, so I listened to her. She was a bit perplexed herself and I did notice her looking through the file where she saw that the word "right" had been written repeatedly. She told me that she just did the anesthesia side, but would voice my concern. I felt a bit like a child getting a pat on the head at that point... Could someone PLEASE answer this question?? Ugh
The transport team walked in as anesthesia was wrapping up, and said, "They're ready for you!", to which I said, "nobody's cutting on me without knowing what side... MMMkay!!!???" Just about that time, the doctor rounded the corner and said, "I know you", trying to be clever. I said, "Good to see you, Doc, could you PLEASE tell me what side you're cutting on? There seems to be some confusion on the paperwork!". He then pulled out an index card that said, "Morgan, L5-S1, Left", and showed it to me. He then asked, "what side is the pain on?" and I said "BOTH". He then said, "Well if the pain is on both, doing a discectomy on the left only won't help much, will it? What did the consent say that you singed?" I replied, "I thought it said Right" but then I explained that I thought that the resident that was with him that day I came for my office visit said Left Side L5-S1! " He then directed the transport staff to wheel me back into the room to wait some more. He said that he would get to the bottom of it. He was IRRITATED at the nursing staff that hadn't properly prepared the forms. He told us he would go prepare new forms and would go look closer at the MRI. Upon his return, he said, it's definitely a LEFT L5-S1 herniation, and it's a BIG DISC," and he went further to explain that it was large enough and could very well be causing the bilateral pain I've been having. He then took hid sharpie out and marked on my skin where he would operate.
So, new consents were hastily signed and they rolled me in to get the IV installed and I was sure we were almost there. Someone asked, "is 10 ready?" and they yelled yes and pushed me down through Dunn Tower OR to room 3. I saw all the docs and nurses lining the halls and exclaimed, "Are we having fun yet?" just another day at the office for them, One of the British doctors looked down and said, "Good luck, and thanks for asking". The transport team stopped me in the hall in front of OR3. A nice young nurse came in and said, "I'm a nurse anesthetist that has a cocktail that makes you relax"... We got to talking about the anesthesia (I guess I get talky when I am on the medicine. I thought, "Relaxing Is good at this point", and I pleaded with her to put me WAY under and we both laughed. I could tell that this wasn't her first rodeo. They wheeled me into the OR, and then the anesthesiologist came in and put a mask over my nose and mouth. She said that it was just oxygen and told me to think of happy things to think about, so naturally I started thinking about Adam and our upcoming nuptials. As I looked around I noticed the neat stereo equipment and TV set up in the OR. Pandora Radio - fully wired. Adam had told me how they listened to Pandora in the OR at Scott & White, but this set-up was neat. It almost made me want to be awake so I could rock out with them. Nah, not quite....
So the next thing I remember, I am waking up in ACUTE pain in recovery. I started crying and gasping for air and was trying to say, "Help me", but no one could hear me because my voice was so hoarse. I looked around and couldn't see a nurse or anything much because my eyes felt like they were glued shut. I finally got them opened, and tears ran down my face. I finally saw a nurse, who said that everything was going to be okay as she pushed some pain meds through my IV. At that point, I got really sick and was glad she was right there at that point. Her name was Liz. She kept saying, "It's okay honey, deep breaths", and told me to think of family... friends... things I like to do for fun... I quickly came around and she gave me something for nausea. I felt so much better. My first question for the nurse, besides "Help me?" was "How long did he actually operate?" and she said an hour and a half. TWICE the time he told us that it would take in the pre-op area. I wondered what went wrong and she said that she would look into it and either she would let me know or the doctor would.
At this point, I am sure I was talking Liz's ear off. I told her about the C-section recovery nurse, Shannon that had been such a wonderful comfort during the moments after Aiden's birth at 30 weeks gestation. I expressed my gratitude for recovery room nurses and shared with her the story of the recovery room nurses that meant so much comfort to Sophie during her recovery from the curettage of her Histiocytosis tumor. The world greatly underestimates good nurses! Having had both yesterday, I was thankful for Liz. Thankful by a LOT.
At that point, I was taken by the waiting room where we picked up my mom. She was happy to see me. I can't imagine the fear she must have felt when a 45 minute surgery turned into an hour and a half. On second thought, that reminds me of exactly what happened during Sophie's surgery and I just apologized to mom that it took so long. She said that the doctor had come into the waiting room to tell her I made it through surgery when he was done. She said that he also told her that it was a BIG disc, and that it took quite a bit of dissection because it was really stuck in there. He said I should start to feel relief from pain over the next week and that I need to be careful not to over do it, but that I should really feel a lot better. About the time we made it into the recovery room, he came by, and told me much the same thing. I thanked him profusely for making sure things went well and how appreciative I was for his talent. The moral of this story is ALWAYS ask for a "time out" before you have surgery! You don't want them operating on the wrong part!
About the time he left, I dozed and the nurse came in to wake me up with Apple Juice and Cranberry Juice as well as some crackers. I told her that I got sick in the recovery room so she said, probably best to stick to water until I get my bearings. So, I went straight for the water. My throat was sore and I needed hydration. After downing the apple juice I asked for more water and the nurse got me up to walk around. I was impressed that I was able to pass the criteria to be able to go home very quickly. I rested for a bit, and then I was allowed to go home. Home... just where I wanted to be!
Needless to say I made it through surgery just fine and was home by about 5pm after what was another bumpy ride home... It's always comforting to arrive home when you've been dreading a procedure for years. I had contemplating doing this some time ago, but when the GI doctor said no more anti-inflammatory meds, and that I was cut off because my stomach was such a mess, and the pain started to creep in with a VENGANCE, I knew it was time to act. After two opinions from two very skilled doctors, I feel like, I got the very best care possible. I pray that the recovery goes smoothly and I am able to be the best mom to Sophie and Aiden and best mom and soon to be wife to my future husband "The Awesome Mr. P" and his family. I look forward to the quality of life I will have if this surgery was a success and I am able to recover properly. Now it's up to me to discipline myself enough to know not to bend or lift for six weeks, though I will probably be back to work in just a few weeks. I am really looking forward to that!
To my Histio Family, I will tell you, I mentioned Histiocytosis to about every nurse, nurse anesthetist, doctor and tech I could get my hands on. I encouraged them all to look it up, and even though they probably thought I was nuts, I just wanted to let them know about so maybe, if they see a case of it going forward, they won't miss it!
Thank you to all of you who have held us in your prayers. Thank you to my church, who had food delivered to us last night for last night's dinner and breakfast this morning. Thank you to my fiance, "The Awesome Mr. P" for driving three hours with his four children in tow to be here for me to help me heal. We are so humbled by this gesture and grateful that I can just focus on my getting better instead of worrying about anything. This has been pretty painful, but hopefully the pain will improve as healing begins. Now to get some sleep! Big hugs from all of us to you!
We know that illness doesn't come from You! You are there to see us through...
We know that you are the God of comfort, guidance, peace and truth
We know that everything we do should be to glorify YOU and build each other up
When given the opportunity You call us to be an example to others by how we handle ourselves in crisis.
We know as we heal from disease or physical challenges or deal with terminal illness,
If we lean on you, O Lord, we will find comfort and peace,
We know that You are the God that has delivered people from illness and has also comforted the ones who can't be healed.
Help us to feel your omnipresence as we go through these days.
Help us to continue to lean on you and believe in you through the doubts that creep in because we are human.
You are strong, invincible and are a rock to lean on to be our refuge in times of trouble.
Help us to remember and be grateful for the Grace you sent in the form of Jesus Christ who died on the cross while we were yet sinners so that we may not have to suffer, but have eternal life with You in heaven.
(John 3:16 para)
Talk to you soon dear friends,
Sunday, August 7, 2011
I will write a detailed recount of the days events once I come to.
Have a great day Friends,