Me and Adam on Easter |
Me, Sophie, Adam and Aiden |
Aiden, Me & Sophie. Fun times at Easter! |
Today is full of excitement for us once again.
My dad is going to the cardiologist, so please pray for him as he looks at the potential for more testing. He’s been having symptoms and was in the hospital for three days last week going through tests. I just want him to be better. He’s too young for this.
Also, Sophie was home from school yesterday with severe back pain. She’s going through more testing on May the 16th at the Cancer Center, but had to go endure another “it’s nothing, just take ibuprophen” visit with the pediatrician. We love Sophie’s pediatrician, but it’s hard when we know the LCH could be at work in her, and probably is just searching her little body for weak spots to attack. Depressing, but we will push through. And, I’m doing everything in my power to distract Sophie from the pain and discomfort by keeping her busy. She has swimming lessons today and also has TAKS tests today and tomorrow at school which will most likely wear her out. She was SO tired when I laid her down on her pillow last night that she went right to sleep. She came into my bed in the middle of the night again though, so I didn’t sleep too well. Occupational hazard of motherhood, I guess…
Just as a reminder to all of you out there, there is a Histiocytosis web page at www.histio.org and I am going to hopefully start volunteering with them soon. There is also a Histio eStore out there where you can buy fun little items and the proceeds go to benefit Histiocytosis research!
Aiden will be TWO next week. It’s hard to imagine that it’s been two years since my precious little man landed on the scene. He’s been such a blessing to us and even with the immune disorder, the Epilepsy and Cerebral Palsy, I think it’s amazing how far he’s come in such a small amount of time. The kids are such a miracle.
This weekend, we had an amazing time with Adam and my folks. We went down to Bay City on Saturday and spent Sunday with them as well. Though the trip was too short, it was good to go and see everyone at St. Paul’s UMC and be a part of the service. Sophie was the most precious acolyte and Aiden helped carry the Easter lilies down to the communion rail in the front of the church. It’s a tradition for the little ones to carry the lilies down to the front. It was so cute to see a parade of little munchkins carrying their Easter lilies down. Some of them weren’t any bigger than their plant.
May the God of Easter be with you again as you walk through today… He has risen from the grave and dwells among us until the ascension. Cherish His presence this Easter season, my friends! To God be the glory, Amen.
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