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Tuesday, April 5, 2011

Letter to LCH

A friend on FB recommended that we write to Histio... Here's what I came up with...

Dear LCH,

You came into our lives and caught us all by complete surprise since October of last year, you have eaten away at my precious daughter’s skull. You created a hole in my perfect angel’s skull and it’s just not fair. She was the last person in our family we ever expected to get sick. EVER… She’s been so very healthy except the LCH. I am praying that she is lesion free when we have the scans on Monday the 11th and that you leave her alone. In Jesus name I rebuke this disease, and pray the Lord’s healing power over Sophie and all of the other histio warriors that have and are fighting this dreaded disease. You may re-appear in another spot, and we realize that the threat of new lesions is very real and we are prepared. We will fight back! May the Lord bless the amazing doctors and nurses and scientists who are on the front lines of this disease, may they be given the strength to discover every nuance of you from petry dish to patient, one baby step at a time! Give them the strength THEY need as well as give us the strength WE need to fight back every day, from needles to scans, from sleepless nights filled with tears and worry… Together we are MORE POWERFUL than this disease and we will NOT relent and we will NOT fail. We will beat you HISTIO!

Take Care Friends,
J

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