Medical Message & Prayer

Medical Update:

Today I am trying to collect myself from the complete and total frustration of the events of the last few days. I am struggling to stay strong when all I want to do is cry. I know God can use this testimony to do great things, but I really don't like how my kids are having to endure biopsies, blood tests and screenings when all I want them to do is play ball, swim, jump and throw normal baby tantrums even! Tonight as I was putting Aiden in the bath tub, I had to say "No" about something, and you would have thought I ripped his arm off!! All I kept thinking of was when he couldn't cry, because he was intibated for so long, and when he throws a fit, I am actually SO THANKFUL... funny when you think about it, I guess...

Well here's the update on the kiddos...

Sophie:

So, we went to the oncologist to status with him yesterday regarding Sophie's treatment. We got GREAT news! She doesn't have to go back to see them for two months! And, her blood counts were normal also. She is so brave! A few tears, but once I assured her there wouldn't be another PET Scan, I could tell she was relieved. Wait 'til I tell her they just called me and told me that her blood work was NORMAL! What is NORMAL anyway? Ours sure has changed from what it used to be.

After the oncology visit, we saw the neurologist. He wondered why they didn't repeat her MRI to monitor her "bump" but also reassured me that they were the experts, but to ask them if we could do one after our next office visit in July. Then, the neurologist said more good news, taper off the headache med, and don't come see me for four months. Music to our ears!!!

Aiden:

Fear and trepidation surrounded the second half of the oncology office visit, though. Aiden has a resistant cradle cap and a swollen, red lymph node behind his left ear. The cradle cap won't go away no matter what I do. And, it was worth asking about. Not to mention, he's got a rash all over his body and had strep throat and seizures due to his Epilepsy last week. They said in the ER that epileptics will have more seizures if they are ill, and boy was he! 103 fever, seizures, rash, strep… It was rough on mom and I and he felt awful. The pediatrician suspected that it was a virus on Friday. But, Sophie's oncologist said to bring him on in they wanted to take an "informal" look. So, we did. Sophie's primary oncologist said he wasn't sure he would biopsy, but then called the other oncologist in, which told us everything we needed to know. He said, "I would biopsy", especially considering what Sophie's gone through. The pediatrician (Friday) said that she suspects that it's just "cradle cap" and the dermatologist today says that he has an ointment for it, but then also said that he didn't disagree with NOT doing a biopsy to be 100% sure. I told him to call the Oncology guys and talk to them and get a breakdown of what exactly they wanted him to do. He said that he couldn't biopsy it today anyway because we needed to get some numbing medication first to apply prior to the procedure. They should have called it out to us yesterday and then we would have had it and could of done it today, rather than taking MORE time off work to go into the office to have them tell us to come back on Thursday. And, even though I had called the dermatologist and told the office there to please be sure to call the oncologist first so that he could make sure to get an adequate sample according to their specifics, they hadn't even spoken yet. I stressed again the importance of it because it sounded like they had some real specifics of what needed to be done in this particular case when we saw the oncology team. Frustrating! The biopsy is scheduled for Thursday morning at 9:45am. Please pray!

Prayer:

This song came on when I was on the way home from lunch with a very dear friend of mine today.  Every time I hear it, it strikes a chord in so many ways.

What Faith Can Do by Kutless

Everybody falls sometimes
Gotta find the strength to rise
From the ashes
And make a new beginning

Anyone can feel the ache
You think it's more than you can take
But you're stronger
Stronger than you know

Don't you give up now
The sun will soon be shining
You gotta face the clouds
To find the silver lining

I've seen dreams that move the mountains
Hope that doesn't ever end
Even when the sky is falling
I've seen miracles just happen
Silent prayers get answered
Broken hearts become brand new
That's what faith can do

It doesn't matter what you've heard
Impossible is not a word
It's just a reason
For someone not to try

Everybody's scared to death
When they decide to take that step
Out on the water
It'll be alright

Life is so much more
Than what your eyes are seeing
You will find your way
If you keep believing

I've seen dreams that move the mountains
Hope that doesn't ever end
Even when the sky is falling
I've seen miracles just happen
Silent prayers get answered
Broken hearts become brand new
That's what faith can do

Overcome the odds
You don't have a chance
(That's what faith can do)
When the world says you can't
It'll tell you that you can

I've seen dreams that move the mountains
Hope that doesn't ever end
Even when the sky is falling
And I've seen miracles just happen
Silent prayers get answered
Broken hearts become brand new
That's what faith can do
That's what faith can do

Even if you fall sometimes
You will have the strength to rise

AMEN!

I don't know if this link will work, but you can see the video and hear the song here:

http://www.youtube.com/watch?v=u1JBSQMkQEo

Good night and God bless!

J